Cerebral palsy: the meaning of physical therapy for mother caregivers

Abstract

Introduction: : Exercise therapy, as applied by a physiotherapist, aims to improve the acquisition of functional skills by children with cerebral palsy (CP). Treatment instructions are given to mothers, but are frequently not followed. Objective: To get to know the meaning of the role of physiotherapy in the treatment of children with CP, according to their mothers´ perception; and to check mothers´ compliance with physiotherapists´ recommendations at home. Methods: This was a qualitative study. Interviews were conducted with 11 mother caregivers. Data were collected through interviews based on a guide questions about the meaning of the role of physiotherapy in the treatment of children with CP, and about the continuity of care outside the outpatient setting. All the interviews were recorded, transcribed and analyzed using Bardin´s content analysis technique. Results: These women have a positive perception of the physical therapy treatment; they value and recognize the benefits, by emphasizing that it provides for the physical, psychological and social recovery of their children. Mothers are aware of the benefits of treatment and that it is important to continue treatment at home. They show themselves willing and able to implement the recommendations given by the physical therapist, and demonstrate their constant concern for the welfare of their children. Conclusion: Physiotherapists should work more intensively with mothers who fail to adhere to home treatment programs. They should try and identify the reasons for their non-compliance, offer them guidance, advice, and assistance in order to clarify doubts and help solve difficulties faced by caregivers.